Caregiver Burden And Psychosocial Factors In Mothers With Autism Spectrum Disorder Children
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Introduction: Burden experienced by mother can delayed the success of therapy to ASD children. This study aims to determine the correlation of psychosocial factors and caregiver burden in mothers with ASD children.
Methods: This study was a cross-sectional analytic study on mothers with ASD children at the Children's Daycare Dr.Soetomo General Hospital. The research instrument used sociodemographic questionnaire and a Caregiver Burden Assessment (CBA). Results: This study was followed by 26 mothers with ASD children.
Results: The results showed that 50% of mothers experienced moderate burdens and 34% experienced severe burdens. The results of the correlation analysis showed a significant relationship between caregiver burden and maternal age (p<0.05, r=0.316) and child age (p<0.05, r=0.274). Support and assistance from others in caring for GSA children also correlated with the mother's caregiver burden (p<0.05, r=0.118). Maternal caregiver burden is not correlated with marital status, education level, occupation, and economic status.
Conclusion: Mothers with ASD children experience a psychological burden while caring for ASD children. Psychosocial support and assistance from the environment are urgently needed to reduce the caregiver burden on mothers so that they can improve the outcomes of interventions and therapy for children with ASD.
Bashir A, Bashir U, Lone A, Ahmad Z. Challenges faced by families of autistic children. Int J Interdiscip Res Innov. 2014;2(1):64–8.
Wignyosumarto S, Mukhlas M, Shirataki S. Epidemiological and clinical study of autistic children in Yogyakarta , Indonesia. Kobe J Med Sci. 1992;(Cdc).
Apostelina E. Resiliensi keluarga pada keluarga yang memiliki anak autis. JPPP-Jurnal Penelit dan Pengukuran Psikol. 2012;1(1):164–76.
Sim A, Vaz S, Cordier R, Joosten A, Parsons D, Smith C, et al. Factors associated with stress in families of children with autism spectrum disorder. Dev Neurorehabil. 2017;
Nik Adib NAi, Ibrahim MI, Rahman AA, Bakar RS, Yahaya NA, Hussin S, et al. Perceived Stress among Caregivers of Children with Autism Spectrum Disorder : A State-Wide Study. Int J Environ Res Public Health. 2019;16:1–11.
Pisula E, Mohammadi MR. Parenting Stress in Mothers and Fathers of Children with Autism Spectrum Disorders. IntechOpen; 2011.
Sau C, Ng M, Fang Y, Wang Z, Zhang M. Potential Factors of Parenting Stress in Chinese Parents of Children With Autism Spectrum Disorder : A Systematic Review. Focus Autism Other Dev Disabl. 2021;0:1–12.
Karimah A. Korelasi Tingkat Pendidikan dan Umur Caregiver Laki-laki/perempuan dengan Burden pada Keluarga Penderita Skizofrenia yang Berkunjung ke URJ Kedokteran Jiwa RSUD Dr. Soetomo Surabaya. Lap Penelitian, FK UNAIR. 2008;
Anh MTL. FACTORS RELATED TO BURDEN AMONG CAREGIVERS OF CHILDREN. Burapha University; 2015.
Pandey S, Sharma C. Perceived Burden in Caregivers of Children with Autism Spectrum Disorder. J Nepal Heal Res Counc. 2018;16(2):184–9.
Al-dujaili AH, AJ A-MD. Psychosocial burden among caregivers of children with autism spectrum disorder in Najaf province. Curr Pediatr Res. 2017;
Lerthattasilp T, Charernboon T, Chunsuwan I, Siriumpunkul P. Depression and Burden among Caregivers of Children with Autistic Spectrum Disorder. J Med Assoc Thai. 2015;98.
Almansour MA, Alateeq MA, Alzahrani MK, Algeffari MA, Alhomaidan HT. Depression and anxiety among parents and caregivers of autistic spectral disorder children. Neurosciences. 2013;18(1):58–63.
Hoefman R, Payakachat N, van Exel J, Kuhlthau K, Kovacs E, Pyne J, et al. Caring for a child with autism spectrum disorder and parents' quality of life: application of the CarerQol. J Autism Dev Disord. 2014;44(8):1933–45.
Mak WWS, Kwok YTY. Internalization of stigma for parents of children with autism spectrum disorder in Hong Kong. Soc Sci Med. 2010;70(Cdc).
Picardi A, Gigantesco A, Tarolla E, Stoppioni V, Cerbo R, Cremonte M, et al. Clinical Practice & Epidemiology in Parental Burden and its Correlates in Families of Children with Autism Spectrum Disorder : A Multicentre Study with Two Comparison Groups. Clin Pract Epidemiol Ment Heal. 2018;14:143–76.
Alnazly EK, Abojedi A. Psychological distress and perceived burden in caregivers of persons with autism spectrum disorder. Perspect Psychiatr Care. 2019;(April 2018).
Cetinbakis G, Bastug G, Ozel-Kizil E. Factors contributing to higher caregiving burden in Turkish mothers of children with autism spectrum disorders. Int J Dev Disabil. 2018;
Misquiatti ARN, Brito MC, Ferreira FTS, Junior FBA. Family Burden and Children with Autism Spectrum Disorders: Perspective of Caregivers. Rev CEFAC. 2015;17(2):192–200.
S€oderqvist H, Kajsa E, Hedman B, Wentz E. The caregivers ' perspectives of burden before and after an internet-based intervention of young persons with ADHD or autism spectrum disorder. Scand J Occup Ther. 2017;
Marsack CN, Samuel PS. Mediating Effects of Social Support on Quality of Life for Parents of Adults with Autism. J Autism Dev Disord. 2017;47(8):2378–89.
Ezzat O, Bayoumi M, Samarkandi OA. Quality of Life and Subjective Burden on Family Caregiver of Children with Autism. Am J Nurs. 2017;6(1):33–9.
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