Family Experience of Caring for a Diabetes Mellitus Patient: A Qualitative Study
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Introduction:Diabetes mellitus is a chronic disease that requires lifelong care. The treatment of diabetes mellitus patients at home requires a family role so then the patients can optimize their care. The diabetes complications can be reduced as a result. The aim of this study was to explore the family experience of treating diabetes mellitus patients at home.
Methods: A semi-structured phenomenological approach including inductive thematic analysis was used in this research. Thirteen family members of diabetes patients participated in the discussion. Participant recruitment was focused on families that have treated diabetes patients for more than 1 year with no complications. Data saturation occurred after 2-3 meetings per participant.
Results: The experiences of the family members while caring for diabetes mellitus patient can be used to determine the presence of 5 themes: family feelings that appear when caring for diabetes mellitus patients, patient adherence to taking medication, patient's disobedience of their diet, patient's disobedience of activity and the family expectations of the future
Conclusion: In every theme, family experience obstacles arise between the families' wants and the patients' needs. Diet and activity became a major obstacle to diabetic care at home. Some topics needed more attention, such as the information and support provided for the family.A.A., L., J.D., P., M., H., & A.-M., R. (2018). Diabetes distress and glycemic control: The buffering effect of autonomy support from important family members and friends. Diabetes Care, 41(6), 1157–1163. https://doi.org/10.2337/dc17-2396
Abubakari, A., Cousins, R., Thomas, C., Sharma, D., Naderali, E. K., Park, H., & Liverpool, L. (2016). Sociodemographic and Clinical Predictors of Self-Management among People with Poorly Controlled Type 1 and Type 2 Diabetes : The Role of Illness Perceptions and Self-Efficacy. Journal of Diabetes Research, 2016.
Ahola, A. J., & Groop, P. H. (2013). Barriers to self-management of diabetes. Diabetic Medicine, 30(4), 413–420. https://doi.org/10.1111/dme.12105
Al-Khawaldeh, O. A., Al-Hassan, M. A., & Froelicher, E. S. (2012). Self-efficacy, self-management, and glycemic control in adults with type 2 diabetes mellitus. Journal of Diabetes and Its Complications, 26(1), 10–16. https://doi.org/10.1016/j.jdiacomp.2011.11.002
Alpers, R. R. (2010). A Review of "Nursing and family caregiving: Social support and nonsupport.” In Health Care for Women International (Vol. 31). https://doi.org/10.1080/07399332.2010.500134
Ansari, R. M., Hosseinzadeh, H., Harris, M., & Zwar, N. (2018). Self-management experiences among middle-aged population of rural area of Pakistan with type 2 diabetes: A qualitative analysis. Clinical Epidemiology and Global Health, (February), 0–1. https://doi.org/10.1016/j.cegh.2018.04.003
Astalin, P. K. (2013). Qualitative Research Designs: A Conceptual Framework. International Journal of Social Science and Interdisciplinary Reasearch, 2(1), 118–124. https://doi.org/10.1063/1.2163485
Baek, R. N., Tanenbaum, M. L., & Gonzalez, J. S. (2014). Diabetes Burden and Diabetes Distress: the Buffering Effect of Social Support. Annals of Behavioral Medicine, 48(2), 145–155. https://doi.org/10.1007/s12160-013-9585-4
Berg, B. L. (2001). Qualitative Research Methods for The Social Sciences (Fourth). Boston: Allyn and Bacon.
Coser, A., Sittner, K. J., Walls, M. L., & Handeland, T. (2018). Caregiving Stress Among American Indians With Type 2 Diabetes: The Importance of Awareness of Connectedness and Family Support. Journal of Family Nursing, 24(4), 621–639. https://doi.org/10.1177/1074840718810550
Dziegielewski, S. F., Wodarski, J. S., Lawrence, S. A., Zittek-Palamara, Ki., & Dulmus, C. N. (2007). Human behavior and the social environment. In J. S. Wodarski & S. F. Dziegielewski (Eds.), New York. https://doi.org/10.1109/ICDE.2002.994737
Edward, K. leigh, & Welch, A. (2011). The extension of Colaizzi's method of phenomenological enquiry. Contemporary Nurse, 39(2), 163–171. https://doi.org/10.5172/conu.2011.39.2.163
Gamboa Moreno, E., Mateo-Abad, M., Ochoa de Retana García, L., Vrotsou, K., del Campo Pena, E., Sánchez Perez, Á., ... Rotaeche del Campo, R. (2018). Efficacy of a self-management education programme on patients with type 2 diabetes in primary care: A randomised controlled trial. Primary Care Diabetes, 1–12. https://doi.org/10.1016/j.pcd.2018.10.001
Gomes, L. C., Coelho, A. C. M., Gomides, D. dos S., Foss-Freitas, M. C., Foss, M. C., & Pace, A. E. (2017). Contribution of family social support to the metabolic control of people with diabetes mellitus: A randomized controlled clinical trial. Applied Nursing Research, 36, 68–76. https://doi.org/10.1016/j.apnr.2017.05.009
Jannoo, Z., & Mamode Khan, N. (2019). Medication Adherence and Diabetes Self-Care Activities among Patients with Type 2 Diabetes Mellitus. Value in Health Regional Issues, 18, 30–35. https://doi.org/10.1016/j.vhri.2018.06.003
Joo, J. Y., & Lee, H. (2016). Barriers to and facilitators of diabetes self-management with elderly Korean-American immigrants. International Council of Nurses, 63, 277–284.
King, D. K., Glasgow, R. E., Toobert, D. J., Strycker, L. A., Estabrooks, P. A., Osuna, D., & Faber, A. J. (2010). Self-efficacy, problem solving, and social-environmental support are associated with diabetes self-management behaviors. Diabetes Care, 33(4), 751–753. https://doi.org/10.2337/dc09-1746
Kristianingrum, N. D., Wiarsih, W., & Nursasi, A. Y. (2018). Perceived family support among older persons in diabetes mellitus self-management. BMC Geriatrics, 18(Suppl 1), 1–5. https://doi.org/10.1186/s12877-018-0981-2
Macedo, M. M. L., Cortez, D. N., Santos, J. C. dos, Reis, I. A., & Torres, H. de C. (2017). Adherence to self-care practices and empowerment of people with diabetes mellitus: A randomized clinical trial. Revista Da Escola de Enfermagem, 51, 1–8. https://doi.org/10.1590/S1980-220X2016050303278
Mansyur, C. L., Rustveld, L. O., Nash, S. G., & Jibaja-Weiss, M. L. (2015). Social factors and barriers to self-care adherence in Hispanic men and women with diabetes. Patient Education and Counseling, 98(6), 805–810. https://doi.org/10.1016/j.pec.2015.03.001
Mayberry, L. S., Harper, K. J., & Osborn, C. Y. (2016). Family behaviors and type 2 diabetes: What to target and how to address in interventions for adults with low socioeconomic status. Chronic Illness, 12(3), 199–215. https://doi.org/10.1177/1742395316644303
Mogre, V., Abanga, Z. O., Tzelepis, F., Johnson, N. A., & Paul, C. (2017). Adherence to and factors associated with self-care behaviours in type 2 diabetes patients in Ghana. BMC Endocrine Disorders, 17(1), 1–8. https://doi.org/10.1186/s12902-017-0169-3
Morrow, R., Rodriguez, A., & King, N. (2015). Colaizzi's descriptive phenomenological method. The Psychologist, 28(8), 643–644.
Pamungkas, R. A., Chamroonsawasdi, K., & Vatanasomboon, P. (2017). A systematic review: Family support integrated with diabetes self-management among uncontrolled type II diabetes mellitus patients. Behavioral Sciences, 7(3), 1–17. https://doi.org/10.3390/bs7030062
Ramkisson, S., Pillay, B. J., & Sibanda, W. (2017). Social support and coping in adults with type 2 diabetes. African Journal of Primary Health Care and Family Medicine, 9(1), 1–8. https://doi.org/10.4102/phcfm.v9i1.1405
Royer, A. (1998). Life with chronic illness: Social and Psychological Dimensions. Westport, Connecticut: Greenwood Publishing Group.
Salom?, G. M., De Almeida, S. A., Mendes, B., De Carvalho, M. R. F., Bueno, J. C., Massahud, M. R., & Ferreira, L. M. (2017). Association of Sociodemographic Factors with Spirituality and Hope in Patients with Diabetic Foot Ulcers. Advances in Skin and Wound Care, 30(1), 35–39. https://doi.org/10.1097/01.ASW.0000508446.58173.29
Shahab, Y., Alofivae-Doorbinnia, O., Reath, J., MacMillan, F., Simmons, D., McBride, K., & Abbott, P. (2019). Samoan migrants' perspectives on diabetes: A qualitative study. Health Promotion Journal of Australia, 30(3), 317–323. https://doi.org/10.1002/hpja.240
Shawon, M. S. R., Hossain, F. B., Adhikary, G., Das Gupta, R., Hashan, M. R., Rabbi, M. F., & Ahsan, G. U. (2016). Attitude towards diabetes and social and family support among type 2 diabetes patients attending a tertiary-care hospital in Bangladesh: A cross-sectional study. BMC Research Notes, 9(1), 1–8. https://doi.org/10.1186/s13104-016-2081-8
Simon-Tuval, T., Shmueli, A., & Harman-Boehm, I. (2016). Adherence to Self-Care Behaviors among Patients with Type 2 Diabetes”The Role of Risk Preferences. Value in Health, 19(6), 844–851. https://doi.org/10.1016/j.jval.2016.04.003
Sina, M., Graffy, J., & Simmons, D. (2018). Associations between barriers to self-care and diabetes complications among patients with type 2 diabetes. Diabetes Research and Clinical Practice, 141, 126–131. https://doi.org/10.1016/j.diabres.2018.04.031
Yue, P., Lamb, K. V., Chen, X., Wang, Y., Xiao, S., Feng, X., & Wu, Y. (2019). Identification of Family Factors That Affect Self-Management Behaviors Among Patients With Type 2 Diabetes: A Qualitative Descriptive Study in Chinese Communities. Journal of Transcultural Nursing, 30(3), 250–259. https://doi.org/10.1177/1043659618793713
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