Caregiver Burden and Depression Among Caregivers of Patients with Chronic Disease
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Introduction: Caring for people with chronic diseases is physically and emotionally demanding. It can also have adverse effects on the caretaker, such as depression. Caregiver burden describes the psychological and financial strains of providing care. Depression in caregivers' manifests as concern, indecision, and an inability to feel the future. Chronic disease is a condition that takes a long time to treat and may progressively get worse over time. This study aims to identify the level of caregiver burden and depression and the correlation between burden and depression among caregivers of patients with chronic diseases.
Methods: A self-administered questionnaire containing the Caregiver Burden Inventory and Beck Depression Inventory was used to measure caregiver burden and depression among 217 caregivers of patients with chronic diseases in a teaching hospital in the Klang Valley.
Results: The findings showed that the majority of caregivers experienced a mild burden (n = 168, 77.4%), a moderate burden (n = 43, 19.8%), and a severe burden (n = 6, 2.8%). Following mild depression (n = 17, 7.8%), moderate depression (n = 15, 6.9%), and severe depression (n = 4, 1.8%), some caregivers experienced minimal depression (n = 181, 83.4%). According to Pearson's analysis, the link between caregiver burden and depression was statistically significant (p<0.000) with a positive correlation (r = 0.408).
Conclusion: In this study, caregivers experienced burden and depression due to providing care. Future studies should incorporate support and resources for caregivers, including respite care and counselling that can promote overall well-being.
Abdul Hadi, A. B., Pasi, H. B. and Yousef, N. E. E. A. A. (2018) ‘Prevalence of Depression amongst Caregivers of Stroke Patients Attending Hospital Universiti Sains Malaysia’, IIUM Medical Journal Malaysia, 17(2 SE-). doi: 10.31436/imjm.v17i2.983.
Abdul Mulud, Z., Mccarthy, G. and Mohamad, N. (2018) ‘Translation, Cross-Cultural Adaptation, Reliability and Validity of the Malay Version Caregiver Burden Inventory (CBI) for Caregivers of Individuals with Mental Illness’, Advanced Science Letters, 24, pp. 293–295. doi: 10.1166/asl.2018.11988.
Akgul, N. and Ozdemir, L. (2014) ‘Caregiver burden among primary caregivers of patients undergoing peripheral blood stem cell transplantation: A cross sectional study’, European Journal of Oncology Nursing, 18(4), pp. 372–377. doi: 10.1016/j.ejon.2014.03.013.
Beck, A. T. et al. (1961) ‘An inventory for measuring depression’, Arch. Gen. Psychiatry, 4(6), pp. 561–571. doi: 10.1001/archpsyc.1961.01710120031004.
Braich, P. S. et al. (2012) ‘Burden and Depression in the Caregivers of Blind Patients in India’, Ophthalmology, 119(2), pp. 221–226. doi: https://doi.org/10.1016/j.ophtha.2011.07.038.
Chai, Y. C. et al. (2018) ‘Caregiver depression: The contributing role of depression in patients, stigma, social support and religiosity’, International Journal of Social Psychiatry, 64(6), pp. 578–588. doi: 10.1177/0020764018792585.
Chung, M. L. et al. (2010) ‘Predictors of depressive symptoms in caregivers of patients with heart failure’, J. Cardiovasc. Nurs., 25(5), pp. 411–419. doi: 10.1097/JCN.0b013e3181d2a58d.
Collaborators, G. B. D. 2017 D. and I. I. and P. (2018) ‘Global, regional, and national incidence, prevalence, and years lived with disability for 354 diseases and injuries for 195 countries and territories, 1990-2017: a systematic analysis for the Global Burden of Disease Study 2017’, Lancet, 392(10159), pp. 1789–1858. doi: 10.1016/S0140-6736(18)32279-7.
Denno, M. S. et al. (2013) ‘Anxiety and Depression Associated With Caregiver Burden in Caregivers of Stroke Survivors With Spasticity’, Archives of Physical Medicine and Rehabilitation, 94(9), pp. 1731–1736. doi: https://doi.org/10.1016/j.apmr.2013.03.014.
Etemadifar, S. et al. (2018) ‘Effects of family-centered empowerment intervention on stress, anxiety, and depression among family caregivers of patients with epilepsy’, Epilepsy Behav., 88, pp. 106–112. doi: 10.1016/j.yebeh.2018.08.030.
Faronbi, J. O. et al. (2019) ‘Caring for the seniors with chronic illness: The lived experience of caregivers of older adults’, Archives of Gerontology and Geriatrics, 82, pp. 8–14. doi: https://doi.org/10.1016/j.archger.2019.01.013.
Gbiri, C. A., Olawale, O. A. and Isaac, S. O. (2015) ‘Stroke management: Informal caregivers’ burdens and strians of caring for stroke survivors’, Ann. Phys. Rehabil. Med., 58(2), pp. 98–103. doi: 10.1016/j.rehab.2014.09.017.
Ghazali, S. B. et al. (2015) ‘Burden of caregivers of the elderly with chronic illnesses and their associated factors in an urban setting in Malaysia’, Malaysian Journal of Public Health Medicine, 15, pp. 1–9.
Institute for Public Health (2015) ‘Summary for Policymakers’, in (IPCC), I. P. on C. C. (ed.) Climate Change 2013 – The Physical Science Basis: Working Group I Contribution to the Fifth Assessment Report of the Intergovernmental Panel on Climate Change. Cambridge: Cambridge University Press, pp. 1–30. doi: DOI: 10.1017/CBO9781107415324.004.
Institute for Public Health (IPH) (2012) National Health and Morbidity Survey (NHMS) 2011 (NMRR-10-757-6837) Volume III : Healthcare Demand and Out-of-Pocket Health Enpenditure. Edited by Nordin Saleh et al. The National Health and Morbidity Survey 2011.
Kellner, S. et al. (2017) ‘Perceived embarrassment and caregiver burden in essential tremor caregivers’, J. Neurol. Sci., 383, pp. 205–210. doi: 10.1016/j.jns.2017.11.020.
Lahlou-Laforêt, K. et al. (2015) ‘Validity of Beck Depression Inventory for the assessment of depressive mood in chronic heart failure patients’, J. Affect. Disord., 184, pp. 256–260. doi: 10.1016/j.jad.2015.05.056.
Liang, Y.-D. et al. (2017) ‘Caregiving burden and depression in paid caregivers of hospitalized patients: a pilot study in China’, BMC Public Health, 18(1), p. 53. doi: 10.1186/s12889-017-4563-6.
Limpawattana, P. et al. (2013) ‘Caregivers Burden of Older Adults with Chronic Illnesses in the Community: A Cross-Sectional Study’, Journal of Community Health, 38(1), pp. 40–45. doi: 10.1007/s10900-012-9576-6.
Lin, W. F., Chen, L. H. and Li, T.-S. (2013) ‘Adult Children’s Caregiver Burden and Depression: The Moderating Roles of Parent–Child Relationship Satisfaction and Feedback from Others’, Journal of Happiness Studies, 14(2), pp. 673–687. doi: 10.1007/s10902-012-9348-0.
Lum, H. D. et al. (2014) ‘Caregiving in heart failure: Relationship quality is associated with caregiver benefit finding and caregiver burden’, Heart Lung, 43(4), pp. 306–310. doi: 10.1016/j.hrtlng.2014.05.002.
Malik, F. A., Gysels, M. and Higginson, I. J. (2013) ‘Living with breathlessness: A survey of caregivers of breathless patients with lung cancer or heart failure’, Palliative Medicine, 27(7), pp. 647–656. doi: 10.1177/0269216313488812.
Miyawaki, C. E. (2015) ‘A Review of Ethnicity, Culture, and Acculturation Among Asian Caregivers of Older Adults (2000-2012)’, SAGE Open, 5(1), p. 2158244014566365. doi: 10.1177/2158244014566365.
Mukhtar, F. and P. S. Oei, T. (2011) ‘A review on the prevalence of depression in Malaysia’, Curr. Psychiatry Rev., 7(3), pp. 234–238. doi: 10.2174/157340011797183201.
National Center for Chronic Disease Prevention and Health Promotion (NCCDPHP) (2019a) About Chronic Diseases, Center for Disease Control and Prevention (CDC). Available at: https://www.cdc.gov/chronicdisease/about/index.htm.
National Center for Chronic Disease Prevention and Health Promotion (NCCDPHP) (2019b) Health and Economic Costs of Chronic Diseases, Center for Disease Control and Prevention (CDC). Available at: https://www.cdc.gov/chronicdisease/about/costs/index.htm.
Novak, M. and Guest, C. (1989) ‘Application of a multidimensional caregiver burden inventory’, Gerontologist, 29(6), pp. 798–803. doi: 10.1093/geront/29.6.798.
Olagundoye, O. and Alugo, M. (2018) ‘Caregiving and the Family’, in Mollaoglu, M. (ed.). Rijeka: IntechOpen, p. Ch. 1. doi: 10.5772/intechopen.72627.
Othman, Z. et al. (2014) ‘Caregiver Burden is Associated with Cognitive Decline and Physical Disability of Elderly Post-Stroke Patients’, Middle-East Journal of Scientific Research, 22(9), pp. 1265–1271. doi: 10.5829/idosi.mejsr.2014.22.09.9216.
Park, C. H. et al. (2012) ‘Determinants of the burden and positivity of family caregivers of terminally ill cancer patients in Korea’, Psycho-Oncology, 21(3), pp. 282–290. doi: 10.1002/pon.1893.
Petruzzo, A. et al. (2019) ‘Influence of preparedness on anxiety, depression, and quality of life in caregivers of heart failure patients: Testing a model of path analysis’, Patient Education and Counseling, 102(5), pp. 1021–1028. doi: https://doi.org/10.1016/j.pec.2018.12.027.
Pucciarelli, G. et al. (2018) ‘Quality of life, anxiety, depression and burden among stroke caregivers: A longitudinal, observational multicentre study’, Journal of Advanced Nursing, 74(8), pp. 1875–1887. doi: 10.1111/jan.13695.
Rogers, M. L., Ringer, F. B. and Joiner, T. E. (2018) ‘The association between suicidal ideation and lifetime suicide attempts is strongest at low levels of depression’, Psychiatry Res., 270, pp. 324–328. doi: 10.1016/j.psychres.2018.09.061.
Shakya, D. (2017) ‘Burden and Depression among Caregivers of Hemodialysis Patients’, Palliative Medicine & Care: Open Access, 4(1), pp. 1–6. doi: 10.15226/2374-8362/4/1/00131.
Strang, S. et al. (2019) ‘Support to informal caregivers of patients with severe chronic obstructive pulmonary disease: a qualitative study of caregivers’ and professionals’ experiences in Swedish hospitals’, BMJ Open, 9(8), p. e028720. doi: 10.1136/bmjopen-2018-028720.
Vahidi, M. et al. (2016) ‘Other Side of Breast Cancer: Factors Associated with Caregiver Burden’, Asian Nursing Research, 10(3), pp. 201–206. doi: https://doi.org/10.1016/j.anr.2016.06.002.
Wang, L.-J. et al. (2016) ‘Depression, caregiver burden and social support among caregivers of retinoblastoma patients in China’, Int. J. Nurs. Pract., 22(5), pp. 478–485. doi: 10.1111/ijn.12458.
Yoon, S.-J. et al. (2014) ‘Modifiable factors associated with caregiver burden among family caregivers of terminally ill Korean cancer patients’, Supportive Care in Cancer, 22(5), pp. 1243–1250. doi: 10.1007/s00520-013-2077-z.
Zhang, Q. et al. (2014) ‘Factors Influencing Sleep Disturbances among Spouse Caregivers of Cancer Patients in Northeast China’, PLOS ONE, 9(10), p. e108614. Available at: https://doi.org/10.1371/journal.pone.0108614.
Zhu, W. and Jiang, Y. (2018) ‘A meta-analytic study of predictors for informal caregiver burden in patients with stroke’, J. Stroke Cerebrovasc. Dis., 27(12), pp. 3636–3646. doi: 10.1016/j.jstrokecerebrovasdis.2018.08.037.
Zincir, B. S. et al. (2014) ‘Burden and depressive symptoms associated with adult-child caregiving for individuals with heart failure’, ScientificWorldJournal, 2014, p. 641817. doi: 10.1155/2014/641817.
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