Psycho-educational program for enhancing resilience among family caregivers of patients with leukemia in Egypt: a quasi-experimental study
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Introduction: Caring for a loved one with leukemia presents significant challenges and often leads to a substantial caregiver burden. Resilience, adapting and coping effectively with adversity, is crucial for caregivers’ well-being. Psychoeducational interventions incorporating coping strategies, stress management, and decision-making skills have been widely recognized to foster resilience. This study evaluated the effectiveness of a structured psychoeducational program to enhance resilience among family caregivers of patients with leukemia.
Methods: This quasi-experimental pre-post study assessed the effectiveness of a psychoeducational program among 57 family caregivers of patients with leukemia at the National Cancer Institute in Egypt. The Family Resilience Assessment Scale (FRAS) was administered before and after a structured 21-session program. Data were analyzed using IBM SPSS Statistics 23, paired t-tests assessing resilience changes, and Spearman’s correlation to examine associations with demographic and psychological factors. The reliability of the FRAS was confirmed using Cronbach’s alpha (≥0.70).
Results: 66.7% of caregivers were female, 36.8% were aged 25–30, 49.1% were married, and 66.7% provided care for more than eight hours daily. Statistically significant improvements (p < 0.01) were observed in communication, emotional expression, problem solving, resource utilization, maintaining a positive outlook, family connectedness, spirituality, meaning making, and flexibility after the intervention.
Conclusions: The psychoeducational program significantly improved resilience among family caregivers of patients with leukemia. These findings highlight the importance of integrating such interventions into caregiver support programs to reduce stress and promote well-being. Future studies should examine the long-term sustainability of these benefits.
Alfaro-Díaz, C. et al. (2022) ‘Effectiveness of Nursing Interventions for Patients With Cancer and their Family Members: A Systematic Review’, Journal of Family Nursing, 28(2), pp. 95–114. doi: 10.1177/10748407211068816.
Al Ali, N. M., Eid, A. and Aljada, N. (2023) ‘Determinants of Quality of Life in Family Caregivers of Patients With Leukemia: A Cross-Sectional Study’, SAGE Open, 13(4), pp. 1–10. doi: 10.1177/21582440231205350.
Amin, S. M. et al. (2024) ‘Assessing caregiver stress and resource needs in pediatric cancer care’, BMC Nursing, 23(1), p. 911. doi: 10.1186/s12912-024-02483-x.
Bechthold, A. C. et al. (2023) ‘What Is Most Important to Family Caregivers When Helping Patients Make Treatment-Related Decisions: Findings from a National Survey’, Cancers, 15(19), p. 4792. doi: 10.3390/cancers15194792.
Brydges, C. (2019) ‘Effect Size Interpretation, Sample Size Calculation, and Statistical Power in Gerontology’. doi: 10.31234/osf.io/u2jbm.
Chesak, S. S. et al. (2023) ‘Outcomes of a Stress Management and Resiliency Training (SMART) Program for Family Caregivers of Individuals With Advanced Head and Neck Cancer’, Oncology Nursing Forum, 50(1), pp. 6–18. doi: 10.1188/23.ONF.6-18.
Cook, W. L., Pedersen, K. A. and Maloney, A. E. (2018) ‘Healthy physical coactivity in parent–child dyads of children with overweight.’, Journal of Family Psychology, 32(5), pp. 676–685. doi: 10.1037/fam0000423.
Dionne-Odom, J. N. et al. (2021) ‘Resilience, preparedness, and distress among family caregivers of patients with advanced cancer’, Supportive Care in Cancer, 29(11), pp. 6913–6920. doi: 10.1007/s00520-021-06265-y.
Elfeky, M. (2023) ‘The effect of psychoeducational program on coping patterns of mothers having children newly diagnosed with cancer’, Helwan International Journal for Nursing Research and Practice, 2(2), pp. 13–43. doi: 10.21608/hijnrp.2023.225233.1082.
Elmeshad, A. M., Hanafy, S. M. and Osman, A. (2025) ‘Effect of Educational Guidelines on Caregivers ’ Burden of Patients with Gynaecological Cancer’, 16(1), pp. 291–306.
Genter, P. et al. (2021) ‘Protocol for “Resilient Caregivers”: a randomised trial of a resilience-based intervention for psychologically distressed partner caregivers of patients with cancer’, BMJ Open, 11(11), p. e048327. doi: 10.1136/bmjopen-2020-048327.
Guo, F. et al. (2024) ‘Effectiveness of a family empowerment program on caregiving capacity and adverse mood in caregivers of children with acute leukemia: a quasi-experimental study’, BMC Nursing, 23(1), p. 307. doi: 10.1186/s12912-024-01973-2.
Hasan, E.S., et al., 2020. Knowledge and performance of mothers having children with cancer undergoing chemotherapy. Minia Scientific Nursing Journal, 8(1), pp.65–74. https://doi.org/10.21608/msnj.2020.188042.
Hausner, E. et al. (2018) ‘Study filters for non-randomized studies of interventions consistently lacked sensitivity upon external validation’, BMC Medical Research Methodology, 18(1), p. 171. doi: 10.1186/s12874-018-0625-4.
Huang, Y. et al. (2023) ‘Finding family resilience in adversity: A grounded theory of families with children diagnosed with leukaemia’, Journal of Clinical Nursing, 32(15–16), pp. 5160–5172. doi: 10.1111/jocn.16615.
Ibrahim, A. S. et al. (2014) ‘Cancer Incidence in Egypt: Results of the National Population-Based Cancer Registry Program’, Journal of Cancer Epidemiology, 2014, pp. 1–18. doi: 10.1155/2014/437971.
Ibrahim, A.M., et al., 2024. Effectiveness of a palliative care education program for caregivers of cancer patients receiving chemotherapy in Port Said City: A pre-post quasi-experimental study. Palliative and Supportive Care, 22(3), pp.546–562. https://doi.org/10.1017/S1478951523002067.
Kajiwara, K. et al. (2023) ‘Nursing Support for Caregiver Burden in Family Caregivers of Patients With Cancer: A Scoping Review’, American Journal of Hospice and Palliative Medicine®. doi: 10.1177/10499091231215808.
Maciejewski, M. L. (2020) ‘Quasi-experimental design’, Biostatistics & Epidemiology, 4(1), pp. 38–47. doi: 10.1080/24709360.2018.1477468.
Meijer, P. et al. (2025) ‘Provide proactive reproducible analysis transparency with every publication’, Royal Society Open Science, 12(3). doi: 10.1098/rsos.241936.
Mirhosseini, S. et al. (2025) ‘Support based on psychoeducation intervention to address quality of life and care burden among caregivers of patients with cancer: a randomized controlled trial’, Frontiers in Psychology, 16. doi: 10.3389/fpsyg.2025.1430371.
Mohamed Mustafa, A., Mustafa El-Ashry, N. and Mahmoud, S. (2019) ‘Resilience and Psychological Wellbeing among Parents of Leukemic Child at 57357 Hospital’, Egyptian Journal of Health Care, 10(1), pp. 476–487. doi: 10.21608/ejhc.2019.239100.
Mollaei, F. et al. (2024) ‘Resilience and related factors in caregivers of adult cancer patients: a systematic review’, Annals of Medicine & Surgery, 86(6), pp. 3451–3459. doi: 10.1097/MS9.0000000000001469.
Nadrowska, N., Błażek, M. and Lewandowska-Walter, A. (2017) ‘Family resilience – definition of construct and preliminary results of the Polish adaptation of the Family Resilience Assessment Scale (FRAS)’, Current Issues in Personality Psychology, 5(4), pp. 313–322. doi: 10.5114/cipp.2017.67895.
Opsomer, S. et al. (2022) ‘Resilience in advanced cancer caregiving. A systematic review and meta-synthesis’, Palliative Medicine, 36(1), pp. 44–58. doi: 10.1177/02692163211057749.
Palacio G, C. et al. (2020) ‘Resilience in Caregivers: A Systematic Review’, American Journal of Hospice and Palliative Medicine®, 37(8), pp. 648–658. doi: 10.1177/1049909119893977.
Park, M. et al. (2022) ‘Family resilience factors affecting family adaptation of children with cancer: A cross-sectional study’, European Journal of Oncology Nursing, 56, p. 102078. doi: 10.1016/j.ejon.2021.102078.
Qiu, M. and Wu, Y. (2024) ‘Understanding the experience of family caregivers of patients with leukemia: a qualitative analysis of online blogs’, Humanities and Social Sciences Communications, 11(1), pp. 1–11. doi: 10.1057/s41599-024-02830-y.
Rezaei, M. et al. (2024) ‘Caregiving consequences in cancer family caregivers: a narrative review of qualitative studies’, Frontiers in Public Health, 12(March). doi: 10.3389/fpubh.2024.1334842.
Rostami, M. et al. (2023) ‘Quality of life among family caregivers of cancer patients: an investigation of SF-36 domains’, BMC Psychology, 11(1), pp. 1–19. doi: 10.1186/s40359-023-01399-6.
Shao, M. et al. (2023) ‘Family resilience in cancer treatment and key influencing factors: A systematic review’, European Journal of Oncology Nursing, 66, p. 102403. doi: 10.1016/j.ejon.2023.102403.
Stuart, E. A. and Lesko, C. R. (2020) ‘The Promise, and Challenges, of Methods to Enhance the External Validity of Randomized Trial Results’, Clinical Pharmacology & Therapeutics, 108(6), pp. 1132–1134. doi: 10.1002/cpt.1992.
Suttorp, M. et al. (2021) ‘Definition, Epidemiology, Pathophysiology, and Essential Criteria for Diagnosis of Pediatric Chronic Myeloid Leukemia’, Cancers, 13(4), p. 798. doi: 10.3390/cancers13040798.
Thalappil, S., Pulickal, T. T. and Krishnan, Y. (2024) ‘Resilience among Caregivers of the Pediatric Cancer Patients’, Indian Journal of Social Psychiatry. doi: 10.4103/ijsp.ijsp_197_23.
Toledano-Toledano, F. et al. (2019) ‘The measurement scale of resilience among family caregivers of children with cancer: a psychometric evaluation’, BMC Public Health, 19(1), p. 1164. doi: 10.1186/s12889-019-7512-8.
Walsh, F. (2003) ‘Family resilience: A framework for clinical practice’, Family Process, 42(1), pp. 1–18. doi: 10.1111/j.1545-5300.2003.00001.x.
Xu, Q. et al. (2024) ‘Assessing the mediating role of family resilience between caregiver burden and caregiver capacity: a cross-sectional study among Chinese stroke survivors and family caregivers in a real-world setting’, BMJ Open, 14(5), p. e083106. doi: 10.1136/bmjopen-2023-083106.
Yucel, E., Zhang, S. and Panjabi, S. (2021) ‘Health-Related and Economic Burden Among Family Caregivers of Patients with Acute Myeloid Leukemia or Hematological Malignancies’, Advances in Therapy, 38(10), pp. 5002–5024. doi: 10.1007/s12325-021-01872-x.
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