Parenting self-efficacy mediates relationship between caregiving burden and parenting stress among parents of adolescents with disabilities: a cross-sectional study

Downloads
Introduction: The study examines the role of parenting self-efficacy as a mediator in the relationship between caregiver burden and parenting stress.
Methods: A cross-sectional study was conducted with 204 parents of children with disabilities. Data were collected using self-administered questionnaires, including the General Information Questionnaire, Zarit Burden Interview Questionnaire, Parenting Sense of Competence Scale (PSOC Scale), and Parenting Stress Index. Data analysis included multiple linear regression and Hayes’s PROCESS Macro.
Results: The mean scores for caregiving burden, parenting self-efficacy, and parenting stress were 16.98 (SD = 10.10), 31.03 (SD = 6.72), and 61.72 (SD = 12.84), respectively. Parenting stress was negatively correlated with parenting self-efficacy (r = –0.35, p < 0.001). The findings reveal that caregiving burden significantly reduces parenting self-efficacy (B = −0.16, p < 0.001), which in turn lowers the ability of caregivers to manage stress (B = −0.48, p < 0.001). While caregiving burden has a direct effect on parenting stress (B = 0.07, p < 0.001), the total impact, including both direct and indirect influences, remains significant (B = 0.52, p < 0.001) with mediation percentages of 12.9%.
Conclusions: The findings suggest that strategies to enhance parenting self-efficacy could significantly reduce the negative impact of caregiving burden on parenting stress. By improving self-efficacy, caregivers may better manage stress, highlighting the importance of targeted interventions that boost self-efficacy.
Aktu, Y. (2024). The role of parenting stress on parenting self-efficacy and parental burnout among Turkish parents: a moderated mediation model. BMC psychology, 12.1, 475.doi:
Albanese, A. M., et al. (2019). The role of parental self‐efficacy in parent and child well‐being: A systematic review of associated outcomes. Child: care, health and development, 45.3, 333-363.doi:
Alibekova, R., et al. (2022). Stress, anxiety and depression in parents of children with autism spectrum disorders in Kazakhstan: prevalence and associated factors. Global Mental Health, 9. 472-482.doi:
Ashmitha, K. A., et al. (2024). Effectiveness of psychosocial intervention and psychoeducation in improving psychological well-being and cognitive functioning in caregivers of substance use issues: a pilot study. Annals of Neurosciences, 31.3, 157-165.doi:
Chen, S. D., et al. (2021). Parental self-efficacy and behavioral problems in children with autism during COVID-19: A moderated mediation model of parenting stress and perceived social support. Psychology research and behavior management, 1291-1301.doi:
Cidav, Z., et al. (2012). Implications of childhood autism for parental employment and earnings. Pediatrics, 129.4, 617-623.doi:
Çolak, B. & Kahriman, I. (2023). Evaluation of family burden and quality of life of parents with children with disability. The American Journal of Family Therapy, 51.2, 113-133.doi:
Cookson, L. W. L. 2022. The Effects of Respite Care on Foster Caregivers’ Self-Efficacy and Compassion Fatigue. Alliant International University.
Daulay, N., et al. (2020). Validity and reliability of parenting stress construct among mothers of children with autistic spectrum disorder. Jurnal Psikologi, 47.1, 1-17.doi:
Dijkstra-De Neijs, L., et al. (2024). Parental Stress and Quality of Life in Parents of Young Children with Autism. Child Psychiatry & Human Development, 1-15.doi:
Duru, E. E., et al. (2024). Cost of long-term care and balancing caregiver wellbeing: a narrative review. Expert Review of Pharmacoeconomics & Outcomes Research, 24.8, 883-897.doi:
Fields, D. R. 2021. The Relationship Between Stress and Self-Efficacy in Primary Caregivers of Children Diagnosed with Autism, Trevecca Nazarene University.
Fong, C. Y. & Ali, M. M. (2023). Parental stress in caring for children with disability. International Journal of Academic Research in Business and Social Sciences, 13.5, 1033-1046.doi:
Frias, C. E., et al. (2020). Effectiveness of a psychoeducational intervention for caregivers of people with dementia with regard to burden, anxiety and depression: a systematic review. Journal of advanced nursing, 76.3, 787-802.doi:
Fu, W., et al. (2023). Parenting stress and parenting efficacy of parents having children with disabilities in China: The role of social support. International journal of environmental research and public health, 20.3, 2133.doi:
Fye, M. E. 2019. Self-care for the Caregiver: Testing a Mediation Model of Caregiving Stress, Caregiver Functional Ability, and Self-care among MS Caregivers. Adler University.
Gupta, V. B. (2007). Comparison of parenting stress in different developmental disabilities. Journal of developmental and physical disabilities, 19. 417-425.doi:
Irazábal, M., et al. (2012). Family burden related to clinical and functional variables of people with intellectual disability with and without a mental disorder. Research in developmental disabilities, 33.3, 796-803.doi:
Iskayanti, A. & Hartini, N. (2019). Self-efficacy parenting and nursing stress: Study on mother from spectrum autism children. Psikohumaniora: Jurnal Penelitian Psikologi, 4.1, 43-52.doi:
Johnston, C., & Mash, E. J. (1989). A measure of parenting satisfaction and efficacy. Journal of clinical child psychology, 18(2), 167-175.
Keniş-Coşkun, Ö., et al. (2020). The relationship between caregiver burden and resilience and quality of life in a Turkish pediatric rehabilitation facility. Journal of pediatric nursing, 52. e108-e113.doi:
Khatimah, H. (2018). Hubungan Antara Dukungan Keluarga Dan Caregiver Burden Pada Family Caregiver Pasien Stroke.doi:
Kurzrok, J., McBride, E. and Grossman, R.B. (2021) ‘Autism-specific parenting self-efficacy: An examination of the role of parent-reported intervention involvement, satisfaction with intervention-related training, and caregiver burden’, Autism, 25(5), pp. 1395–1408. Available at: https://doi.org/10.1177/1362361321990931.
Langley, E., et al. (2017). Parental relationship satisfaction in families of children with autism spectrum disorder (ASD): A multilevel analysis. Autism Research, 10.7, 1259-1268.doi:
Lawrence, K. 2024. Respite Care: Who Cares for the Caregiver? , The University of North Carolina at Greensboro.
Ministry of Health Indonesia. (2018). Laporan Riskesdas 2018 Nasional.pdf. In Lembaga Penerbit Balitbangkes (p. hal 156). https://repository.badankebijakan.kemkes.go.id/id/eprint/3514/1/Laporan Riskesdas 2018 Nasional.pdf
Öztürk, M. & Alemdar, D. K. (2023). The care burden of mothers of children with disability: Association between family quality of life and fatigue. Journal of Pediatric Nursing, 73. e418-e425.doi:
Parker Oliver, D., et al. (2017). The effect of internet group support for caregivers on social support, self-efficacy, and caregiver burden: a meta-analysis. Telemedicine and e-Health, 23.8, 621-629.doi:
Picardi, A., et al. (2018). Parental burden and its correlates in families of children with autism spectrum disorder: a multicentre study with two comparison groups. Clinical practice and epidemiology in mental health: CP & EMH, 14. 143.doi:
Pihet, S., et al. (2024). Adaptation of a psycho-educational group programme to improve coping in dementia caregiving: a feasibility study with mixed-methods. BMC geriatrics, 24.1, 197.doi:
Ricci, F., et al. (2017). Psychological aspects in parents of children with disability and behavior problems. European Psychiatry, 41. S792.doi:
Romano, D., et al. (2022). Carer burden: Associations with attachment, self-efficacy, and care-seeking. Journal of Social and Personal Relationships, 39.5, 1213-1236.doi:
Sabo, K. & Chin, E. (2021). Self-care needs and practices for the older adult caregiver: An integrative review. Geriatric Nursing, 42.2, 570-581.doi:
Sak‐Dankosky, N., et al. (2022). Interventions improving well‐being of adult cancer patients’ caregivers: A systematic review. Journal of advanced nursing, 78.9, 2747-2764.doi:
Sevgi, G. & Ayran, G. (2024). Investigating the caregiving burden and stress of mothers with children with special needs. Journal of Pediatric Nursing, 77. e538-e545.doi:
Siegert, R. J., et al. (2010). Factor analysis and Rasch analysis of the Zarit Burden Interview for acquired brain injury carer research. Journal of rehabilitation medicine, 42.4, 302-309.doi:
Smith, L. E., et al. (2010). Daily experiences among mothers of adolescents and adults with autism spectrum disorder. Journal of autism and developmental disorders, 40. 167-178.doi:
Stephenson, K. G., et al. (2023). Child behavior problems and parenting stress in underserved families of children with ASD: Investigation of family resources and parenting self-efficacy. Journal of Autism and Developmental Disorders, 53.10, 3787-3798.doi:
UNICEF (2023a) ‘Children with disabilitie’. Available at: https://data.unicef.org/topic/child-disability/overview/.
UNICEF (2023b) ‘Key issues for children with disabilities in Indonesia’. Available at: https://www.unicef.org/indonesia/social-policy/publication/key-issues-children-with-disabilities.
Unwin, G. & Deb, S. (2011). Family caregiver uplift and burden: Associations with aggressive behavior in adults with intellectual disability. Journal of Mental Health Research in Intellectual Disabilities, 4.3, 186-205.doi:
Vonneilich, N., et al. (2016). The impact of care on family and health-related quality of life of parents with chronically ill and disabled children. Disability and rehabilitation, 38.8, 761-767.doi:
Wu, M., et al. (2024). Parenting self-efficacy and parenting stress mediates the effects of the association of perceived social support and readiness for discharge among parents of children with primary nephrotic syndrome. Journal of Pediatric Nursing, 75. e93-e101.doi:
Yang, X., et al. (2016). Caregiving Experience for Children With Intellectual Disabilities Among Parents in a Developing Area in C Hina. Journal of Applied Research in Intellectual Disabilities, 29.1, 46-57.doi:
Yang, Z., et al. (2023). Self-efficacy and well-being in the association between caregiver burden and sleep quality among caregivers of elderly patients having multiple chronic conditions in rural China: a serial multiple mediation analysis. BMC nursing, 22.1, 424.doi:
Yazicioğlu, T., et al. (2024). Family stress and self-efficacy in parents of children with special needs: The regulatory role of perceived social support. Children and Youth Services Review, 163. 107804.doi:
Yeung, N. C., et al. (2020). Caregiving burden and self-efficacy mediate the association between individual characteristics and depressive symptoms among husbands of Chinese breast cancer patients. Supportive Care in Cancer, 28. 3125-3133.doi:
Yolanda, M. (2012) The relationship between family functioning and parenting self-efficacy among working mother. Universitas Indonesia
Copyright (c) 2025 Jurnal Ners

This work is licensed under a Creative Commons Attribution 4.0 International License.
Authors who publish with Jurnal Ners agree to the following terms:
- Authors transfer the Copyright and grant Jurnal Ners the right of first publication with the work simultaneously licensed under a Creative Commons Attribution 4.0 International License that allows others to remix, adapt and build upon the work with an acknowledgment of the work's authorship and of the initial publication in Jurnal Ners.
- Authors are permitted to copy and redistribute the journal's published version of the work (e.g., post it to an institutional repository or publish it in a book), with an acknowledgment of its initial publication in Jurnal Ners.
Jurnal Ners requires a formal written declaration and transfer of copyright from the author(s) for each article published. We, therefore, ask you to complete and return this form, retaining a copy for your own records. Your cooperation is essential and appreciated. Any delay will result in a delay in publication. The form can be downloaded HERE.