Parental Burnout in Parents with Autism Spectrum Disorder Children
Downloads
This research aims to describe the overview of parental burnout in parents with children with autism spectrum disorder. This research used intrinsic case through interviews, field notes, documents, artifacts. Data were analyzed by thematic analysis by Braun & Clarke. The results showed that all participants experienced parental burnout that was unique, but almost similar. The experiences are the experience of fatigue, the experience of inability, the experience of contrast, the experience of distance from children, and the experience of the Covid-19 pandemic. Parental burnout is caused by unbalanced risk and protective factors. These risk factors come from internal individuals, internal families, and external factors. Meanwhile, protective factors come from support and love for children. It has impact on oneself, family, children, and society. To overcome parental burnout, efforts are made related to individual relaxation efforts, individual learning efforts, relational efforts, and parenting efforts for children.
American Psychiatric Association (Ed.). (2013). Diagnostic and statistical manual of mental disorders: DSM-5 (5th ed). American Psychiatric Association.
American Psychological Association. (t.t.). Autism Spectrum Disorder. Dalam APA Dictionary. Diambil 14 Oktober 2023, dari https://dictionary.apa.org/autism-spectrum-disorder
Braun, V., & Clarke, V. (2013). Successful qualitative research: A practical guide for beginners (First published). SAGE.
Chodidjah, S., & Kusumasari, A. P. (2018). PENGALAMAN IBU MERAWAT ANAK USIA SEKOLAH DENGAN AUTIS. Jurnal Keperawatan Indonesia, 21(2), 94–100. https://doi.org/10.7454/jki.v21i2.545
Collins, W. A., & Madsen, S. D. (2019). PARENTING DURING MIDDLE CHILDHOOD. Dalam M. H. Bornstein (Ed.), Handbook of parenting (Third edition). Routledge, Taylor & Francis Group.
Damastuti, A., & Adiati, R. P. (2022). Hubungan Perfeksionsime dengan Parental Burnout Ibu Bekerja yang Dimoderasi oleh Perceived Social Support. Buletin Riset Psikologi dan Kesehatan Mental (BRPKM), 2(1), 362–370. https://doi.org/10.20473/brpkm.v2i1.34194
Findling, Y., Barnoy, S., & Itzhaki, M. (2023a). Burden of treatment, emotion work and parental burnout of mothers to children with or without special needs: A pilot study. Current Psychology, 42(22), 19273–19285. https://doi.org/10.1007/s12144-022-03074-2
Findling, Y., Barnoy, S., & Itzhaki, M. (2023b). "God gave you a special child because you are special”: Difficulties, coping strategies, and parental burnout of Jewish mothers – a qualitative study. Frontiers in Psychology, 14, 1259670. https://doi.org/10.3389/fpsyg.2023.1259670
Flynn, L., & Healy, O. (2012). A review of treatments for deficits in social skills and self-help skills in autism spectrum disorder. Research in Autism Spectrum Disorders, 6(1), 431–441. https://doi.org/10.1016/j.rasd.2011.06.016
Gérain, P., & Zech, E. (2018). Does Informal Caregiving Lead to Parental Burnout? Comparing Parents Having (or Not) Children With Mental and Physical Issues. Frontiers in Psychology, 9. https://doi.org/10.3389/fpsyg.2018.00884
Griffith, A. K. (2022). Parental Burnout and Child Maltreatment During the COVID-19 Pandemic. Journal of Family Violence, 37(5), 725–731. https://doi.org/10.1007/s10896-020-00172-2
Himawan, H., Ninin, R. H., & Abidin, F. A. (2021). Gambaran Pola Asuh Orang Tua pada Anak dengan Autism Spectrum Disorder Sebelum dan Setelah Anak Menjalani Terapi. Jurnal Ilmiah Bimbingan Konseling Undiksha, 12(3). https://doi.org/10.23887/jibk.v12i3.40086
Kawamoto, T., Furutani, K., & Alimardani, M. (2018). Preliminary Validation of Japanese Version of the Parental Burnout Inventory and Its Relationship With Perfectionism. Frontiers in Psychology, 9, 970. https://doi.org/10.3389/fpsyg.2018.00970
Kossewska, J., & Wojciechowska, A. (2017). Parental burnout and temporal perspectiveof parents of children with developmental disorders. Educational Psychology, 54(12), 183–202. https://doi.org/10.5604/01.3001.0011.7871
Le Vigouroux, S., Bernat, K., & Charbonnier, E. (2023). Risk Factors and Consequences of Parental Burnout: Role of Early Maladaptive Schemas and Emotion-Focused Coping. Trends in Psychology. https://doi.org/10.1007/s43076-023-00288-6
Lin, G.-X., SzczygieÅ‚, D., Hansotte, L., Roskam, I., & Mikolajczak, M. (2023). Aiming to be perfect parents increases the risk of parental burnout, but emotional competence mitigates it. Current Psychology, 42(2), 1362–1370. https://doi.org/10.1007/s12144-021-01509-w
Lindström, C., í…man, J., & Norberg, A. L. (2011). Parental burnout in relation to sociodemographic, psychosocial and personality factors as well as disease duration and glycaemic control in children with Type 1 diabetes mellitus. Acta Paediatrica, 100(7), 1011–1017. https://doi.org/10.1111/j.1651-2227.2011.02198.x
Liu, S., Zhang, L., Yi, J., Liu, S., Li, D., Wu, D., & Yin, H. (2023). The Relationship Between Parenting Stress and Parental Burnout Among Chinese Parents of Children with ASD: A Moderated Mediation Model. Journal of Autism and Developmental Disorders. https://doi.org/10.1007/s10803-022-05854-y
Macuka, I., Ercegovac, I. R., & Šimunić, A. (2024). Parent Personality, Child Neglect, and Violence in Relation to Competence and Burnout*. Journal of Child and Family Studies. https://doi.org/10.1007/s10826-023-02780-0
Manshadi, Z. D., Fathi, E., Manshadi, M. A. D., & Keyvanmanesh, N. (2023). Mentalization and Self-compassion as Protective Factors for Parental Burnout among Parents with Disabled Children [Preprint]. Dalam Review. https://doi.org/10.21203/rs.3.rs-2681337/v1
Mapsee, S. A. (2022). The Lived Experience of Parents of Children with Autism Spectrum Disorder: A Qualitative Phenomenological Study - ProQuest [Dissertartion, Northcentral University]. https://www.proquest.com/openview/dfb822c8453aee3c41045317da5868f2/1?pq-origsite=gscholar&cbl=18750&diss=y
Mikolajczak, M., Brianda, M. E., Avalosse, H., & Roskam, I. (2018). Consequences of parental burnout: Its specific effect on child neglect and violence. Child Abuse & Neglect, 80, 134–145. https://doi.org/10.1016/j.chiabu.2018.03.025
Mukhtar, D. Y., Kumara, A., Hastjarjo, T. D., & Adiyanti, M. G. (2018). Beban Pengasuhan yang Dialami Oleh Orangtua yang Memiliki Anak dengan Gangguan Spektrum Autis. Talenta Conference Series: Tropical Medicine (TM), 1(1), 163–170. https://doi.org/10.32734/tm.v1i1.42
Paisley, L. (2022). PARENTAL BURNOUT IN MOTHERS AND FATHERS OF CHILDREN WITH AND WITHOUT AUTISM SPECTRUM DISORDER DURING THE COVID-19 PANDEMIC [Dissertartion]. University of Alabama.
Papadopoulos, D. (2021). Mothers' Experiences and Challenges Raising a Child with Autism Spectrum Disorder: A Qualitative Study. Brain Sciences, 11(3), 309. https://doi.org/10.3390/brainsci11030309
Piraino, C., Santelices, M. P., Escobar, M. J., Oyarce, D., & Van Bakel, H. J. A. (2024). Parental burnout in the context of the socio-health crisis and its relationship with abuse and neglect. Children and Youth Services Review, 156, 107249. https://doi.org/10.1016/j.childyouth.2023.107249
Ritchie, J., Lewis, J., McNaughton Nicholls, C., & Ormston, R. (Ed.). (2014). Qualitative research practice: A guide for social science students and researchers (Second edition). Sage.
Roskam, I., Aguiar, J., Akgun, E., Arikan, G., Artavia, M., Avalosse, H., Aunola, K., Bader, M., Bahati, C., Barham, E. J., Besson, E., Beyers, W., Boujut, E., Brianda, M. E., Brytek-Matera, A., Carbonneau, N., César, F., Chen, B.-B., Dorard, G., ... Mikolajczak, M. (2021). Parental Burnout Around the Globe: A 42-Country Study. Affective Science, 2(1), 58–79. https://doi.org/10.1007/s42761-020-00028-4
Roskam, I., Brianda, M.-E., & Mikolajczak, M. (2018). A Step Forward in the Conceptualization and Measurement of Parental Burnout: The Parental Burnout Assessment (PBA). Frontiers in Psychology, 9, 758. https://doi.org/10.3389/fpsyg.2018.00758
Roskam, I., & Mikolajczak, M. (2020). Gender Differences in the Nature, Antecedents and Consequences of Parental Burnout. Sex Roles, 83(7–8), 485–498. https://doi.org/10.1007/s11199-020-01121-5
Roskam, I., Raes, M.-E., & Mikolajczak, M. (2017). Exhausted Parents: Development and Preliminary Validation of the Parental Burnout Inventory. Frontiers in Psychology, 8, 163. https://doi.org/10.3389/fpsyg.2017.00163
Sorkkila, M., & Aunola, K. (2020). Risk Factors for Parental Burnout among Finnish Parents: The Role of Socially Prescribed Perfectionism. Journal of Child and Family Studies, 29(3), 648–659. https://doi.org/10.1007/s10826-019-01607-1
Stake, R. E. (2005). Qualitative Case Studies. Dalam N. K. Denzin & Y. S. Lincoln (Ed.), The SAGE handbook of qualitative research (3rd ed, hlm. 443–446). Sage Publications.
Stanojević, N., Nenadović, V., Fatić, S., & Stokić, M. (2017). Exploring factors of stress level in parents of children with autistic spectrum disorder. Specijalna edukacija i rehabilitacija, 16. https://doi.org/10.5937/specedreh16-13861
Stathopoulou, A., Crokou, V., & Drigas, A. (2023). Exploring the Issue of Parental Burnout with ICT's: How Do the Parents of Children with Disabilities Feel. International Journal of Online and Biomedical Engineering (iJOE), 19(01), Article 01. https://doi.org/10.3991/ijoe.v19i01.35285
Sulaimani, M. F., & Mursi, N. B. (2022). EXPERIENCES OF MOTHERS IN DEALING WITH STIGMA RELATED TO THEIR CHILDREN WITH AUTISM SPECTRUM DISORDER IN THE SAUDI CONTEXT. Problems of Education in the 21st Century, 80(6), 851–864. https://doi.org/10.33225/pec/22.80.851
Sumiwi. (2022, April 7). Autisme A-Z Webinar Peringatan Hari Peduli Autisme Sedunia 2022. Kesmas Kemkes.go.id. https://kesmas.kemkes.go.id/konten/133/0/autisme-a-z-webinar-peringatan-hari-peduli-autisme-sedunia-2022
Ulu, A. E., & Karacasu, G. (2022). Burnout, Anxiety and Coping Attitudes in Parents of Children with Autism Spectrum Disorder. International Journal of Disabilities Sports and Health Sciences, 5(2), Article 2. https://doi.org/10.33438/ijdshs.1181098
Voulgarakis, H. M., Lisa, J. A. S., Conde, K. A., & Davies, E. A. (2023). The Experience of Parenting Children with Autism Spectrum Disorder: A Qualitative Content Analysis. Child Care in Practice, 29(1), 83–95. https://doi.org/10.1080/13575279.2021.1939655
Wai Chau, W. M., & Furness, P. J. (2023). Happiness in Parents of Children with Autism Spectrum Disorder: A Qualitative Study. American Journal of Qualitative Research, 7(1), 168–190. https://doi.org/10.29333/ajqr/12950
Wenji, H., Pan, H., Li, S., Wei, C., & Chen, J. (2023b). Status quo and influencing factors of parents' parenting burnout of children with autism spectrum disorder. 护ç†ç ”究 - Nursing Research, 37(8). https://doi.org/10.12102/j.issn.1009-6493.2023.08.009
WHO. (2023, Maret 29). Autism Spectrum Disorder. WHO. https://www.who.int/news-room/fact-sheets/detail/autism-spectrum-disorders
Yin, R. K. (2003). Case study research: Design and methods (3rd ed). Sage Publications.
Copyright (c) 2024 Annisa Audrey Prasetyanti, Iwan Wahyu Widayat
This work is licensed under a Creative Commons Attribution 4.0 International License.
BRPKM is a periodical publication with open access to the Creative Commons Attribution 4.0 International (CC-BY 4.0). Therfore, the copyright remains with the author.
With this license, anyone has the right to use the information and to re-distribute the content contained in this journal for any purpose, including commercial purposes. It can be done as long as it fulfills two conditions, namely; (1) you shall provide attribution by citing the original link source, and state if any changes have been made; and (2) you may not use any legal provisions or technological means of control that can legally restrict others from doing the things that are permitted by this license.
Journal editors will not ask the author to approve the transfer of copyright on all published manuscripts.
