Quality of Life in Patient with Systemic Lupus Erythematosus (SLE)
Downloads
At present, the number of patients with Systemic Lupus Erythematosus (SLE) continues to increase every year. Treatment for patients with SLE is currently only useful to relieve or eliminate the symptoms that arise. This study aims to see a picture of the quality of life possessed by 13 SLE patients in terms of physical health, emotional health, self-image, pain, planning, fatigue, intimate relationships, and dependence on others. This research was carried out by designing a case study of 13 patients with SLE who reside in Surabaya and are members of the Surabaya branch of the Lupus Indonesia Foundation. Primary data were obtained from interviews with respondents with the help of the Lupus Quality of Life (LupusQoL) questionnaire and weight measurement with the help of digital weight scales. In this study there were 13 SLE patients with female sex between the ages of 15-40 years, highly educated with normal nutritional status, having a job, and earning IDR 1,740,000, had suffered from SLE> 5 years, and had good knowledge about Lupus and SLE. The quality of life of SLE patients shows good value in 3 aspects namely physical health, emotional health, and self-image. In the aspect of fatigue, pain, and dependence on others, there are still patients who have poor quality. The conclusion that can be drawn is that respondents who are majority sufferers of SLE have a fairly good quality of life except for the aspects of pain, fatigue, and dependence on others.
Almehed, K., Carlsten, H. & Forsblad -d'Elia, H., 2010., Health-related quality of life in systemic lupus erythematosus and its association with disease and work disability., Scand J Rhematol, volume 39, pp 58–62.
Anggraeni, C.A., 2011., Asuhan Gizi Nutritional Care Proses. Yogyakarta: Graha Ilmu.
Mcelhone, K., Abbott, J., Shelmerdine, J., Bruce, I. N., Ahmad, Y., Gordon, C., Peers, K., Isenberg, D., Ferenkeh-Koroma, A., Griffiths, B., Akil, M., Maddison, P., and Teh, L., 2007., Development and Validation of a Disease-Specifiic Health-Related Quality of Life Measure, the LupusQoL, for Adults With Systemic Lupus Erythematosus., Arthitis and Rheumatology, volume 57, pp 972–929.
Balsamo, S., Henrique de Mota, L.M., Freure de Carvalho,J., Tibana, R.A., Santos de Santana, F., Moreno, R.L., Gualang, B., Sabtos-Neto, L. & Cunha Nascimento, D., 2013., Low dynamic muscle strength and its associations with fatigue, functional performance, and quality of life in premenopausal patients with systemic lupus erythematosus and low disease activity: case contrrol study. BMC Muscoloskeletal Disorder, volume 14, pp 1471–247.
Barnado, A., Wheless, L., Meyer, A. K., Gilkeson, G.S. & Kamen, DL., 2012. Quality of Life in Patient with Systemic Lupus Erythematosus compared with related controls within a unique African American population. Lupus, Volume 21, pp. 563–569.
Beusterien, K., Bell, J.A., Grinspan, J., Utset, T.O., Kan, H. & Narayanan, S., 2013., Physician-patient interactions and outcomes in systemic lupus erythematosus (SLE): a conceptual model. Lupus, volume 22, pp 1038–1054.
Bexelius, C., Wachmeister, K., Skare, P., Jönsson, L. & Vollenhoven, R. V., 2013. Drivers of cost and Health-Related Quality of Life in Patient with Systemic Lupus Erythematosus (SLE): a Swedish nationwide study based on patient reports. Lupus, Volume 22, pp. 793–801.
Devilliers, H., Amoura, Z., Besancenot, J,F., Bonnotte, B., Pasquali, J,L., Wahl, D., Maurier,F., Kaminsky, P., Pennaforte, J,L., Magy-Bertand, N., Arnaud, L., Binquet, C., Guillemin, F., Boniton-Kopp, C., 2014. Responsiveness of the 36-item Short Form health Survey and the Lupus Quality of Life questionare in SLE. Rheumatology, volume 54, pp. 940–9.
Garris, C.,Oglesby, A., Sulcs, A. & Lee, M., 2013. Impact of Systemic Lupus Erythematosus on burden of illness and work productivity in the united state. Lupus, Volume 22, pp. 1077–1086.
Gordon, c., Isenberg, D., Lestrom, K., Norton, Y., Nikai, E., Pushparajah, D.S. and Schneider, M., 2014. The substantia; burden of sytemic lupus erythematosus on the productivity and careers of patients: a european patient-drivwn online survey. Rheumatology, volume 52, pp 2292–2301.
- Every manuscript submitted to must observe the policy and terms set by the Jurnal Berkala Epidemiologi
- Publication rights to manuscript content published by the Jurnal Berkala Epidemiologi is owned by the journal with the consent and approval of the author(s) concerned. (download copyright agreement)
- Complete texts of electronically published manuscripts can be accessed free of charge if used for educational and research purposes according to copyright regulations.
JBE by Universitas Airlangga is licensed under a Creative Commons Attribution-ShareAlike 4.0 International License.
