Main Article Content
Abstract
Highlights:
1. Awareness of social stigma impact on children with cleft lip and palate is lacking in various areas.
2. Identifying social stigma's influence on children with cleft lip is important to help surgeons prioritize resource allocation and provide further evidence in incorporating quality of life.
Abstract:
Social rejection still happens to a large number of children who have cleft lip and palate. Stigma has a detrimental impact on children with cleft in the aspects of education, employment, marriage, and community acceptance, which can be exacerbated by barriers to high-quality child care. A literature study related to this topic was conducted by searching for articles from 2018 to October 2021 through three databases (i.e., PubMed, Embase, and Medline). The term used for the literature search was "cleft", which generated results that were sorted alphabetically and by relevance. This yielded 15 articles that focused on social stigma's influence on cleft lip and palate patients. In conclusion, the articles generally reported that the awareness of social stigma impacts on children with cleft lip and palate are lacking in various areas. It is important to identify social stigma's influence on children with cleft lip. This can help surgeons prioritize resource allocation and provide further evidence in incorporating quality of life measures into the treatment outcome assessment.
Keywords
Article Details
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References
- Adeyemo W, James O, Butali A (2016). Cleft lip and palate: Parental experiences of stigma, discrimination, and social/structural inequalities. Annals of Maxillofacial Surgery 6, 195. doi: 10.4103/2231-0746.200336.
- Allori AC, Kelley T, Meara JG, et al (2017). A standard set of outcome measures for the comprehensive appraisal of cleft care. The Cleft Palate-Craniofacial Journal 54, 540–54. doi: 10.1597/15-292.
- American Academy of Pediatric Dentistry (2019). Policy on the management of patients with cleft lip/palate and other craniofacial anomalies. American Academy of Pediatric Dentistry.
- American Cleft Palate-Craniofacial Association (2017). Neonatal cleft lip and palate: Instructions for newborn nurseries. ACPA.
- Arista TH, Hutagalung MR (2021). Successful pharyngoplasty after Le Fort I advancement in a severely neglected cleft lip and palate patient. Jurnal Rekonstruksi dan Estetik 4, 24. doi: 10.20473/jre.v4i1.24351.
- Camille A, Evelyne A-K, Martial AE, et al (2014). Advantages of early management of facial clefts in Africa. International Journal of Pediatric Otorhinolaryngology 78, 504–6. doi: 10.1016/ j.ijporl.2013.12.031.
- Conway JC, Taub PJ, Kling R, et al (2015). Ten-year experience of more than 35,000 orofacial clefts in Africa. BMC Pediatrics 15, 8. doi: 10.1186/s12887 -015-0328-5.
- Crerand CE, Conrad AL, Albert M, et al (2017). The Americleft psychosocial outcomes project: A multicenter approach to advancing psychosocial outcomes for youth with cleft lip and palate. Clinical Practice in Pediatrice Psychology 5, 65–76. doi: 10.1037/cpp0000172.
- Datusanantyo RA, Hutagalung MR, Rizaliyana S, et al (2021). Anthropometric outcome of primary unilateral cleft lip repair in Indonesia. The Cleft Palate-Craniofacial Journal 58, 1236–41. doi: 10.1177/1055665620982757.
- Fell MJ, Hoyle T, Abebe ME, et al (2014). The impact of a single surgical intervention for patients with a cleft lip living in rural Ethiopia. Journal of Plastic, Reconstructive & Aesthetic Surgery 67, 1194–200. doi: 10.1016/j.bjps.2014.05.019.
- Hlongwa P, Rispel LC (2018). "People look and ask lots of questions”: Caregivers' perceptions of healthcare provision and support for children born with cleft lip and palate. BMC Public Health 18, 506. doi: 10.1186/s12889-018-5421-x.
- Kumar S, Kroon J, Lalloo R (2014). A systematic review of the impact of parental socio-economic status and home environment characteristics on children's oral health related quality of life. Health and Quality of Life Outcomes 12, 41. doi: 10.1186/1477-7525-12-41.
- Maine RG, Linden AF, Riviello R, et al (2017). Prevalence of untreated surgical conditions in rural Rwanda. JAMA Surgery 152, e174013. doi: 10.1001/jamasurg.2017.4013.
- Mzezewa S, Hamese K, Mashego TAB (2014). Neonatal cleft lip repair in babies with breastfeeding difficulties at Polokwane Mankweng Hospital Complex. South African Journal of Child Health 8, 157. doi: 10.7196/sajch.693.
- Ness AR, Wills AK, Waylen A, et al (2015). Centralization of cleft care in the UK. Part 6: A tale of two studies. Orthodontics & Craniofacial Research 18, 56–62. doi: 10.1111/ocr.12111.
- Ningrum LP, Saputro ID, Zarasade L (2021). Corelation of parents' profiles of children with late cleft repair in Surabaya cleft lip and palate centre (January 2015–December 2017). Jurnal Rekonstruksi dan Estetik 5, 18. doi: 10.20473/ jre.v5i1.24319.
- Roosihermiatie B, Isfandari S, Fauzia Y (2018). Case Report: Diagnosis and treatment of psychosomatic gastritis at a Primary Health Clinic in West Surabaya, Indonesia. Folia Medica Indonesiana 54, 155. doi: 10.20473/fmi.v54i2.8867.
- Soeselo DA, Suparman AS, Budi AS (2019). Parents' knowledge, attitude and behaviour toward cleft lips and cleft palate in Kencana Hospital, Serang, Banten. Journal of Craniofacial Surgery 30, 1105–8. doi: 10.1097/SCS.000000000000 5352.
- Tanaka SA, Mahabir RC, Jupiter DC, et al (2012). Updating the epidemiology of cleft lip with or without cleft palate. Plastic and Reconstructive Surgery 129, 511e-518e. doi: 10.1097/ PRS.0b013e3182402dd1.
- Wong Riff KWY, Tsangaris E, Goodacre T, et al (2017). International multiphase mixed methods study protocol to develop a cross-cultural patient- reported outcome instrument for children and young adults with cleft lip and/ or palate (CLEFT-Q). BMJ Open 7, e015467. doi: 10.1136/bmjopen-2016-015467.
- World Health Organization (2018). Child causes of death, 2000–2016. WHO.
- Worth V, Perry R, Ireland T, et al (2017). Are people with an orofacial cleft at a higher risk of dental caries? A systematic review and meta-analysis. British Dental Journal 223, 37–47. doi: 10.1038/sj.bdj.2017.581.
- Yao CA, Swanson J, Chanson D, et al (2016). Barriers to reconstructive surgery in low- and middle-income countries. Plastic and Recon-structive Surgery 138, 887e-895e. doi: 10.1097/PRS.0000000000002656.
References
Adeyemo W, James O, Butali A (2016). Cleft lip and palate: Parental experiences of stigma, discrimination, and social/structural inequalities. Annals of Maxillofacial Surgery 6, 195. doi: 10.4103/2231-0746.200336.
Allori AC, Kelley T, Meara JG, et al (2017). A standard set of outcome measures for the comprehensive appraisal of cleft care. The Cleft Palate-Craniofacial Journal 54, 540–54. doi: 10.1597/15-292.
American Academy of Pediatric Dentistry (2019). Policy on the management of patients with cleft lip/palate and other craniofacial anomalies. American Academy of Pediatric Dentistry.
American Cleft Palate-Craniofacial Association (2017). Neonatal cleft lip and palate: Instructions for newborn nurseries. ACPA.
Arista TH, Hutagalung MR (2021). Successful pharyngoplasty after Le Fort I advancement in a severely neglected cleft lip and palate patient. Jurnal Rekonstruksi dan Estetik 4, 24. doi: 10.20473/jre.v4i1.24351.
Camille A, Evelyne A-K, Martial AE, et al (2014). Advantages of early management of facial clefts in Africa. International Journal of Pediatric Otorhinolaryngology 78, 504–6. doi: 10.1016/ j.ijporl.2013.12.031.
Conway JC, Taub PJ, Kling R, et al (2015). Ten-year experience of more than 35,000 orofacial clefts in Africa. BMC Pediatrics 15, 8. doi: 10.1186/s12887 -015-0328-5.
Crerand CE, Conrad AL, Albert M, et al (2017). The Americleft psychosocial outcomes project: A multicenter approach to advancing psychosocial outcomes for youth with cleft lip and palate. Clinical Practice in Pediatrice Psychology 5, 65–76. doi: 10.1037/cpp0000172.
Datusanantyo RA, Hutagalung MR, Rizaliyana S, et al (2021). Anthropometric outcome of primary unilateral cleft lip repair in Indonesia. The Cleft Palate-Craniofacial Journal 58, 1236–41. doi: 10.1177/1055665620982757.
Fell MJ, Hoyle T, Abebe ME, et al (2014). The impact of a single surgical intervention for patients with a cleft lip living in rural Ethiopia. Journal of Plastic, Reconstructive & Aesthetic Surgery 67, 1194–200. doi: 10.1016/j.bjps.2014.05.019.
Hlongwa P, Rispel LC (2018). "People look and ask lots of questions”: Caregivers' perceptions of healthcare provision and support for children born with cleft lip and palate. BMC Public Health 18, 506. doi: 10.1186/s12889-018-5421-x.
Kumar S, Kroon J, Lalloo R (2014). A systematic review of the impact of parental socio-economic status and home environment characteristics on children's oral health related quality of life. Health and Quality of Life Outcomes 12, 41. doi: 10.1186/1477-7525-12-41.
Maine RG, Linden AF, Riviello R, et al (2017). Prevalence of untreated surgical conditions in rural Rwanda. JAMA Surgery 152, e174013. doi: 10.1001/jamasurg.2017.4013.
Mzezewa S, Hamese K, Mashego TAB (2014). Neonatal cleft lip repair in babies with breastfeeding difficulties at Polokwane Mankweng Hospital Complex. South African Journal of Child Health 8, 157. doi: 10.7196/sajch.693.
Ness AR, Wills AK, Waylen A, et al (2015). Centralization of cleft care in the UK. Part 6: A tale of two studies. Orthodontics & Craniofacial Research 18, 56–62. doi: 10.1111/ocr.12111.
Ningrum LP, Saputro ID, Zarasade L (2021). Corelation of parents' profiles of children with late cleft repair in Surabaya cleft lip and palate centre (January 2015–December 2017). Jurnal Rekonstruksi dan Estetik 5, 18. doi: 10.20473/ jre.v5i1.24319.
Roosihermiatie B, Isfandari S, Fauzia Y (2018). Case Report: Diagnosis and treatment of psychosomatic gastritis at a Primary Health Clinic in West Surabaya, Indonesia. Folia Medica Indonesiana 54, 155. doi: 10.20473/fmi.v54i2.8867.
Soeselo DA, Suparman AS, Budi AS (2019). Parents' knowledge, attitude and behaviour toward cleft lips and cleft palate in Kencana Hospital, Serang, Banten. Journal of Craniofacial Surgery 30, 1105–8. doi: 10.1097/SCS.000000000000 5352.
Tanaka SA, Mahabir RC, Jupiter DC, et al (2012). Updating the epidemiology of cleft lip with or without cleft palate. Plastic and Reconstructive Surgery 129, 511e-518e. doi: 10.1097/ PRS.0b013e3182402dd1.
Wong Riff KWY, Tsangaris E, Goodacre T, et al (2017). International multiphase mixed methods study protocol to develop a cross-cultural patient- reported outcome instrument for children and young adults with cleft lip and/ or palate (CLEFT-Q). BMJ Open 7, e015467. doi: 10.1136/bmjopen-2016-015467.
World Health Organization (2018). Child causes of death, 2000–2016. WHO.
Worth V, Perry R, Ireland T, et al (2017). Are people with an orofacial cleft at a higher risk of dental caries? A systematic review and meta-analysis. British Dental Journal 223, 37–47. doi: 10.1038/sj.bdj.2017.581.
Yao CA, Swanson J, Chanson D, et al (2016). Barriers to reconstructive surgery in low- and middle-income countries. Plastic and Recon-structive Surgery 138, 887e-895e. doi: 10.1097/PRS.0000000000002656.