Lived Experience of People Living with HIV/AIDS Undergoing Antiretroviral Therapy: A Qualitative Study
Introduction: Antiretroviral therapy is an important factor in improving the quality of life of HIV sufferers, but a complex problem in HIV sufferers is a trigger factor for non-compliance in undergoing ARV therapy. The purpose of this study was to explore the experience of people living with HIV/AIDS (PLWHA) undergoing antiretroviral treatment.
Methods: This study was a qualitative phenomenological study, with a sample of 13 HIV patients (10 men and 3 women) who were taking antiretroviral therapy for more than one year; they were recruited using purposive sampling techniques, and data were collected through in-depth semi-structured interviews, field notes and document reviews. Data were analyzed using the Colaizzi method which consists of nine stages.
Results: There were six themes that emerged from the experience of PLWHA undergoing antiretroviral therapy and these became the subject of this study, namely knowledge of HIV disease and antiretroviral drugs, self-motivation, social support, and skills in undergoing treatment (self-management), adherence, and quality of life.
Conclusion: Of the six themes that emerged, poor knowledge (understanding of the disease and its treatment), social support and self-management were the main factors that were obstacles to and causes of treatment failure; this was due to the unpreparedness for receiving information at the beginning of treatment, lack of motivation, and ignorance in behavior when people had problems with medication.
Capetti, A., & Rizzardini, G. (2019). Expert Opinion on Pharmacotherapy Choosing appropriate pharmacotherapy for drug- resistant HIV. Expert Opinion on Pharmacotherapy, 00(00), 1–12. https://doi.org/10.1080/14656566.2019.1570131
Hendrickson, C., Moolla, A., Maskew, M., Long, L., Fox, M. P., Sanne, I., ... Pascoe, S. (2019). " Even if you ' re HIV-positive there ' s life after if you take your medication ”: experiences of people on long-term ART in South Africa : a short report. AIDS Care, 0(0), 1–6. https://doi.org/10.1080/09540121.2019.1597960
Horvath, K. J., Smolenski, D., & Amico, K. R. (2014). AIDS Care : Psychological and Socio-medical Aspects of AIDS / HIV An empirical test of the information-motivation- behavioral skills model of ART adherence in a sample of HIV-positive persons primarily in out-of-HIV-care settings. (March 2015), 37–41. https://doi.org/10.1080/09540121.2013.802283
Jesus1, G. J. de, Oliveira1, L. B. de, Caliari1, J. de S., Queiroz1, A. A. F. L., Gir1, E., & Reis1, R. K. (2017). Dificuldades do viver com HIV / Aids : Entraves na qualidade de vida Difficulties of living with HIV / Aids : Obstacles to quality of life. 30(3), 301–307.
Kementerian Kesehatan RI. (2018). Perkembangan HIV/AIDS dan Infeksi Menular (IMS) Triwulan IV tahun 2017. Jakarta: Kementerian Kesehatan RI.
Lan, G., Yuan, Z., Cook, A., Xu, Q., Jiang, H., Zheng, H., & Wang, L. (2015). The relationships among social support and quality of life in persons living with HIV / AIDS in Jiangxi and Zhejiang provinces , China. 27(8), 946–953.
Lindayani, L., Chen, Y. C., Wang, J. Der, & Ko, N. Y. (2018). Complex Problems, Care Demands, and Quality of Life Among People Living With HIV in the Antiretroviral Era in Indonesia. Journal of the Association of Nurses in AIDS Care, 29(2), 300–309. https://doi.org/10.1016/j.jana.2017.10.002
Liu, J., Qu, B., Zhu, Y., & Hu, B. (2015). The Influence of Social Support on Quality of Life of Men Who Have Sex with Men in China : A Preliminary Study. 1–10. https://doi.org/10.1371/journal.pone.0127644
Mckinney, O., Modeste, N. N., Lee, J. W., Gleason, P. C., & Maynard-tucker, G. (2014). Determinants of Antiretroviral Therapy Adherence among Women in Southern Malawi : Healthcare Providers ' Perspectives. 2014.
Mwesiga, E. K., Mugenyi, L., Nakasujja, N., Moore, S., Kaddumukasa, M., & Sajatovic, M. (2015). Depression with pain co morbidity effect on quality of life among HIV positive patients in Uganda : a cross sectional study. Health and Quality of Life Outcomes, 1–9. https://doi.org/10.1186/s12955-015-0403-5
Ndubuka, N. O., Lim, H. J., Ehlers, V. J., & Van Der Wal, D. M. (2017). Health-related quality of life of patients on antiretroviral treatment in Botswana: A cross-sectional study. Palliative and Supportive Care, 15(2), 214–222. https://doi.org/10.1017/S1478951516000638
Nelson, L. A., Wallston, K. A., Kripalani, S., Lestourgeon, L. M., Williamson, S. E., & Mayberry, L. S. (2018). Assessing barriers to diabetes medication adherence using the Information-Motivation- Behavioral skills model. Diabetes Research and Clinical Practice, 142, 374–384. https://doi.org/10.1016/j.diabres.2018.05.046
Neupane, S., Dhungana, G. P., & Ghimire, H. C. (2019). Adherence to antiretroviral treatment and associated factors among people living with HIV and AIDS in CHITWAN , Nepal. 1–9.
Nursalam, K, N. D., Misutarno, & S, F. K. (2018). Asuhan Keperawatan pada Pasien Terinfeksi HIV/AIDS (2nd ed.; P. P. Lestari & T. Utami, eds.). Jakarta: Salemba Medika.
Sianturi, E. I., Perwitasari, D. A., Islam, A., & Taxis, K. (2019). The association between ethnicity , stigma , beliefs about medicines and adherence in people living with HIV in a rural area in Indonesia. 1–8.
Tomita, A., Garrett, N., Werner, L., Burns, J. K., Mpanza, L., Mlisana, K., ... Karim, S. S. A. (2014). Health-related quality of life dynamics of HIV-positive South African women up to ART initiation: Evidence from the CAPRISA 002 acute infection cohort study. AIDS and Behavior, 18(6), 1114–1123. https://doi.org/10.1007/s10461-013-0682-y
UNAIDS. (2018). Statistik HIV/AIDS.
Zulliger, R., Barrington, C., Donastorg, Y., Perez, M., & Kerrigan, D. (2015). High Drop-off Along the HIV Care Continuum and ART Interruption Among Female Sex Workers in the Dominican Republic. 69(2), 216–222.
Authors who publish with Jurnal Ners agree to the following terms:
- Authors transfer the Copyright and grant Jurnal Ners the right of first publication with the work simultaneously licensed under a Creative Commons Attribution 4.0 International License that allows others to remix, adapt and build upon the work with an acknowledgment of the work's authorship and of the initial publication in Jurnal Ners.
- Authors are permitted to copy and redistribute the journal's published version of the work (e.g., post it to an institutional repository or publish it in a book), with an acknowledgment of its initial publication in Jurnal Ners.
Jurnal Ners requires a formal written declaration and transfer of copyright from the author(s) for each article published. We, therefore, ask you to complete and return this form, retaining a copy for your own records. Your cooperation is essential and appreciated. Any delay will result in a delay in publication. The form can be downloaded HERE.
